It may be important for parents and teachers to meet at the beginning of each school year. Invite these school staff to an introductory meeting: your child’s teacher(s) including the physical education teacher, learning coordinator, school nurse, principal, or counselor. During an introductory meeting, it may be helpful to describe what SCD is in broad terms (e.g., an inherited disorder that affects the amount of oxygen carried in the bloodstream) and more specifically how SCD impacts your child’s daily life. It may also be important to describe how your child copes with having SCD and to discuss clearly how you wish to be informed when your child has symptoms at school (e.g., call me immediately, when to call paramedics, what hospital you prefer).
