The Sickle Cell Disease Treatment Centers Act of 2022 (H.R. 8855/S. 4866), introduced by Senator Chris Van Hollen (D-Md.), Senator Cory Booker (D-N.J.), Representative Barbara Lee (D-Calif.), and Representative Danny Davis (D-Ill.), would address the unmet needs of patients with SCD, sickle cell trait, and other heritable hemoglobinopathies through the establishment of and funding for a nationwide system of treatment centers as well as much-needed provider and patient training and education resources.
The legislation establishes a nationwide network of more than 120 Sickle Cell Disease Treatment Centers based on a hub-and-spoke framework and provides support for 100 community-based organizations, creates a National Coordinating Center to coordinate the National Sickle Cell Disease Treatment Center Program, and authorizes appropriations of $535,000,000 for fiscal year 2023 and each fiscal year thereafter.
Rep. Lee, Barbara [D-CA-13] (Introduced 09/15/2022)
Rep. Davis, Danny K. [D-IL-7] – 09/15/2022 ORIGINAL COSPONSOR
Rep. Adams, Alma S. [D-NC-12] – 09/15/2022 ORIGINAL COSPONSOR
Sen. Van Hollen, Chris [D-MD] (Introduced 09/15/2022)
Sen. Booker, Cory A. [D-NJ] – 09/15/2022 ORIGINAL COSPONSOR
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MTS Sickle Cell Foundation couldn’t do what we do without the support of the general public, and our business and community partners. These partnerships support us in our mission to not only spread awareness of sickle cell disease, but also support families affected by SCD, celebrate our warriors, and fight for a world without Sickle Cell Disease.