– mts sickle cell foundation, inc. –
COMMUNITY HEALTH WORKER Program
Bridging the Gap in Sickle Cell Care
We are conducting a research study to build on our understanding of the role community health workers play in the evidence-based management of Sickle Cell Disease.
Our 2023 Funding Partner for this research is The GBT Foundation.
Our 2022 Funding Partner for this research grant is UnitedHealthcare.
Description of Study:
The study takes place over 6 months. You will be asked to complete two surveys, one at the beginning of the study and one at the end, to assess management of your Sickle Cell Disease and your satisfaction of services related to SCD. Participation is voluntary and there is no cost associated for participation in this study.
Thank you to Olivia Wamack and the WJBF-TV Augusta’s The Dish for having our Founder Mapillar Dahn and the CEO of UnitedHealthcare Community Plan, Michael Minor, on her show to discuss MTS Sickle Cell Foundation’s partnership with UnitedHealthcare.
who can participate:
- People living with Sickle Cell Disease who meet the following criteria:
- 18 years old or older
- reside in the United States
- experiencing access to care hardships
why participate:
- You will be helping to advance Sickle Cell research
- You will be compensated up to $200 for participating in this study.
Dr. Tilicia Mayo-Gamble is an Assistant Professor of Community Health in the Jiann-Ping Hsu College of Public Health at Georgia Southern University. Her research agenda includes implementing community engagement principles, health communication strategies, chronic disease self-management, and patient-centered care focusing on sickle cell disease.
Dr. Mayo-Gamble is also an advocate for patients with rare diseases and serves on several boards on behalf of patients and caregivers.