– mts sickle cell foundation, inc. –
September is National Sickle Cell Awareness Month, a time to recognize the perseverance of patients living with sickle cell disease (SCD) and to recommit ourselves to improving the quality of life and health outcomes for all individuals living with SCD. Read President Joe Biden’s Proclamation on National Sickle Cell Awareness Month 2022 to learn how federal agencies are working to put an end to SCD.
Also below is a press release from Congressman Danny Davis (D-IL-07), a fierce champion of Sickle Cell Disease, who introduced H. Res. 1330 in the U.S. House of Representatives on Friday, September 2, 2022. This recognition of the importance of addressing sickle cell disease was a collaborative action of Congressman Davis and the co-chairs of the Congressional Sickle Cell Disease Caucus, Congressman Michael C. Burgess, M.D. (R-TX-26), Congresswoman Barbara Lee (D-CA-13), and Congressman Burgess Owens (R-UT-04).
WE THANK THEM ALL!!!
– VERTEX: SCD ADVOCACY SUMMIT –
– NPLB: SCD TRIALS THAT WORK FOR PATIENTS –
– CISCRP: Patient Advisory Board –
– Fulcrum Therapeutics: Children’s Healthcare of Atlanta / MTS Sickle Cell Foundation Meeting –
– Spilled Milk Movie Screening: Flint River Community Center –
– Beaver Ruin Road Baptist Church Speaking Engagement –
– New Morning Light Baptist Church Speaking Engagement –
– Clayton County Library System: Story Time reading of Super Cells –
– EveryLife Foundation: Community Congress Newborn Screening Meeting –
– Caregiver Advocates Meeting –
– Clayton CSA: MTS Sickle Cell Foundation Presentation on SCD –
– Ray’s Old School Corner: MTS Sickle Cell Foundation Presentation on SCD –
– HANGOUT: MTS Sickle Cell Foundation Monthly Support Group –
– JenCare Fest –
– Children’s Healthcare of Atlanta: Sickle Cell Education Day –
– Spilled Milk Movie Screening: CreateATL –
– Let’s Talk About It – Sickle Cell Treatment Centers & Services –
– CONGRESSMAN DANNY K. DAVIS: COUCH CONVERSATIONS WITH THE DOCTORS –
– EVERYLIFE FOUNDATION: COMMUNICATIONS AFFINITY GROUP MEETING –
– Fulcrum Therapeutics: roundabout presentation –
– Spilled Milk Movie Screening: Clayton County Library Headquarters branch –
– Spilled Milk Movie Screening: CreateATL –